Congratulations to the Tuberous Sclerosis Alliance March on the Hill 2018

Congratulations to our client, the Tuberous Sclerosis Alliance, who brought more than 100 advocates to Capitol Hill last week to lobby for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense.

TS Alliance members scheduled meetings with the offices of more than 350 U.S. Representatives and 84 U.S. Senators. In just a matter of a few days, they secured the support of 68 Republican and Democratic Representatives onto a bipartisan letter circulated by Reps. Ileana Ros-Lehtinen (R-FL) and Dave Loebsack (D-IA) expressing support for continued funding for the TSCRP.

I was also honored by the Tuberous Sclerosis Alliance for my 15 years of service with the organization. Proud to be standing here in this photo with my co-awardee, Debora Moritz, one of the most amazing patient advocates I have ever met!

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